The idea of being completely cleaned out of mucus like that sounds wonderful, i haven’t felt like i could breath perfectly since i was like, a teenager
I would be seriously tempted to try this stuff as someone who doesn’t suffer from CF just to see what it would be like.
That being said, I’m sure the side effects for people who do not have an illness are probably pretty horrific. I have not done any research, but usually very powerful drugs have very powerful side effects, especially for people who won’t see any substantial benefit for the drug.
I’m told my family medical history is pretty unpleasant, to the degree i have been apologized to for genetics being passed down; unfortunately getting any specifics beyond “diabetes and misc. heart issues”, and some vague symptoms, is like pulling teeth. Some of the symptoms of CF are… alarmingly familiar. Mainly thick mucus, frequent sinus infections, inflamed nose, difficulty breathing, etc
Edit: oh, and most of my extended family is dead. I’ve got less than 10 living biological relatives that im aware of
Out of an abundance of curiosity, I looked it up and apparently a single 100 milligram pill costs about $300.
I can also get generic mucinex at the Dollar Tree for $1.25, so if it doesn’t clear me out 300 times better than an entire bottle of mucinex at the same time, I don’t think it’s gonna be worth it for me.
Beyond the pricing issue you already found, unless you have specific genetic mutations that cause CF like the F508del mutation, these drugs won’t really do anything for you.
The idea of being completely cleaned out of mucus like that sounds wonderful, i haven’t felt like i could breath perfectly since i was like, a teenager
I would be seriously tempted to try this stuff as someone who doesn’t suffer from CF just to see what it would be like.
That being said, I’m sure the side effects for people who do not have an illness are probably pretty horrific. I have not done any research, but usually very powerful drugs have very powerful side effects, especially for people who won’t see any substantial benefit for the drug.
I’m told my family medical history is pretty unpleasant, to the degree i have been apologized to for genetics being passed down; unfortunately getting any specifics beyond “diabetes and misc. heart issues”, and some vague symptoms, is like pulling teeth. Some of the symptoms of CF are… alarmingly familiar. Mainly thick mucus, frequent sinus infections, inflamed nose, difficulty breathing, etc
Edit: oh, and most of my extended family is dead. I’ve got less than 10 living biological relatives that im aware of
Out of an abundance of curiosity, I looked it up and apparently a single 100 milligram pill costs about $300.
I can also get generic mucinex at the Dollar Tree for $1.25, so if it doesn’t clear me out 300 times better than an entire bottle of mucinex at the same time, I don’t think it’s gonna be worth it for me.
Beyond the pricing issue you already found, unless you have specific genetic mutations that cause CF like the F508del mutation, these drugs won’t really do anything for you.
It targets a very specific genetic mutation, so it does nothing for people who don’t have that mutation (including other people with CF).