[Censored for privacy, sorry, future lemmings)
Fucking sucks but it was impactful to read your story. I’m guessing you’re properly deep in the supplement community, but if you want to chat about them lmk
I’m sorry for your loss of the lifestyle you cherished. Just a random thought: If hearing aids won’t work for you, you could try feeling music instead of hearing it, while it won’t be the same, sensing the underlying beat could help evoke your imagination again and possibly help you rediscover your favourite tunes and new ones.
Definitely the internet is a mixed bag, with lots of doom and gloom, and more cynical and controversial takes elevated to the top. There are also corners of the internet that are positive, definitely go visit them more. Reading fiction and learning from non-fiction literature may be more of a personal comfort than the internet may be.
I got COVID related tinnitus, avoiding beans, and certain soy based oils helps slightly, but it’s not consistent.
I stay healthy by doing painful amounts of exercise each day even if it feels like it’s killing me. It often feels like dying, and sometimes makes me very depressed (all my energy going into it, and being unable to think clearly after). But pushing my exercise limits every day, taking at most one day a week off for rest/recovery has helped.
I pulled myself out doing my own thing.
Can hear, but things sound like the Treble is all tha way up.
Did you get vaccinated? Please say you did, and that you weren’t one of the dumb ones falling for all this bullshit. The vaccines, even if they don’t keep you from falling ill - greatly reduce the effects of Long-Covid, and the problems they cause with the body.
Are you on the spectrum?
Yes. Is that a problem?
Dude, read the room.
This is 100% inappropriate to ask. While I am also very pro-vaccine and frustrated at the anti-vaccine movement, you’re talking to some who is grieving the loss of a major part of their life. Saying all this is on par with “Did your mom X with you” or “This wouldn’t have happened if you didn’t Y so much” to explain disabilities. No one owes you their medical history and shame on you for asking. You’re fishing to put personal blame on to someone so you can get a sense of smug schadenfreude from another suffering. Let’s say the answer is yes, are you truly here to do a victory lap?
Let’s say the answer is yes, are you truly here to do a victory lap?
Yep. And if the answer is no, then I’ll offer my condolences and probably do some research to see what opportunities for treatment they have available - so that I can help in the way I know best.
Yep.
Well that is just an outright cruelty. Fucking stop.
And if the answer is no, then I’ll offer my condolences
Do that anyways.
probably do some research to see what opportunities for treatment they have available
Holy shit don’t. This post isn’t your personal call to action. OP’s doctors know far more about their treatment than some rando online. OP is venting, not asking for your personal medical advice.
Please, try to understand what you are doing here is harmful, not help and learn how the disabled community is begging people to stop saying these things.
You’re speaking to a troll, by the way. This isn’t new behaviour.
what a smug piece of shit. not just because you want to gloat at another’s suffering, but because you are fucking arrogant enough to this that you can help find a solution to a problem OP has had for years.
Do you really think that OP is that much of an idiot that it took them two years to find some random asshole on lemmy to Google shit for them?
You need to do some introspection, holy shit
I have helped find solutions for a handful of people’s medical issues over the years.
I’ve found doctors often don’t care to do this research themselves. You too can help; as someone who cares about this stuff often times a patient’s best hope is usually a family-member who is diligent in asking questions and educating themselves further.
So piss off, internet armchair expert. Doctors aren’t infallable as you may think; and I’ve known plenty to simply don’t give 2 shits and do not look further into stuff such as this.
Doctors aren’t infallable as you may think;
The irony of raging about anti vaxxers while using their talking points.
Anti-vaxxers don’t trust scientific researchers and their research.
I don’t trust for-profit “doctors”, who look at you as a pile of cash to extract money from.
While related to the healthcare industry, they are not one in the same. MRNA vaccines are a technology that has been studied and perfected for a very long time.
Doctors on the other hand, will treat you up until the point where they don’t believe they can extract money from you any longer. But there are still studies on Long-Covid that help advance that research and may even help reduce/eliminate some of the symptoms of its effects. Many of these studies are looking for participants, and don’t exist to extract money from the people joining them; in fact, many will pay participants. They’re risky, but in this particular instance, that may outweigh the problems that are being experienced.
OP has lost their hearing, is bed-ridden, and has lost their future plans. And here you are kicking them while they’re down. There is absolutely nothing appropriate with anything you just said in your comment.
If they fell for it, then they’ve effectively destroyed their own life. I’m not going to be sympathetic towards antivaxxers. The whole world worked as fast as possible to get people protected. If this person then rejected all of that work, all of that effort, and ended up like this? – Then they did it to themselves.
You don’t have to be sympathetic. You also don’t have to be an asshole and rub it in. You know nothing about this person, and yet you’re so quick to pass judgement. I pity you more than I pity OP.
You should probably pity OP more. They lost the genetic lottery on this one. I haven’t had COVID. I’ve been actually harassed and bullied because of the protections I took.
So fuck antivaxxers.
This isn’t about you.
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There is absolutely everything appropriate with it.
If I gouge out my eyes, and then complain to everyone I’m sad now that I’m blind, I’m the one to blame for it. Why would anyone feel pity for me?
Honestly, you sound as bad as those anti-vaxxers, sitting all high and mighty on your throne of shit. You think you’re better than OP because how dare anybody get sick if they were smart enough to get vaccinated like you. Your world is so black and white you cannot possibly fathom any grey in between. It’s ideologies like yours that hurt the rest of us the most.
A week after the government lifted mask mandates here in South Africa the lady who usually helped me at the local pharmacy was dead. She was immunocompromised, and it took just a week of people huffing their breath on her for her to catch COVID and die. Just like that.
I wear my mask religiously whenever I walk into any building. No one is getting COVID because of my criminal negligence.
But it’s not just that. I also wear my mask because I don’t believe people should be allowed to simply forget COVID and all the shitfuckery about our society that it exposed.
Sorry, I know this rant doesn’t help you in any way.
As the only person in my public-facing job to never stop masking, I feel you. Still get random aggression from strangers about it, but will just half-heartedly mention how lucky they are to have not lost anyone personally. Most people I know are missing some family since the pandemic.
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I’m so sorry to hear that. I don’t really have any advice but you’ll be in my thoughts OP, I hope you get better
You have had a major loss.
I’m glad you are still with us to share this story. You wrote in such a clear and eloquent way; it’s clear you cared very much about us that you took the time to communicate effectively.
My father is currently in a nursing home (just for normal end of life stuff). He was a deadbeat most of my life and treated his health really poorly.
It’s cruel that he was able to live the way he did and live for so long, while you’ve done nothing to “earn” your maladies; yet, you’re both in a similar situation (except no one wants to go see him, because of him being a PoS for most of his life). You don’t seem like a deadbeat or a PoS, so as far as I’m concerned, you win.
I hope things turn around completely for you and you’re restored back to full health.
🙏
This reminded me that Apple recently added a feature to iOS called Music Haptics that lets you feel the music on your iPhone. It’s not the same of course but maybe it helps out a little.
Theres a thought. There are headphones that transfer music to vibrations that travel through the bones in your head as opposed to the ear canals. Might be worth looking into
Probably not if the deafness is caused by brain damage.
Knowing anything about it I have to ask… would bone conducting headphones work?
someone tells you major life altering loss and grief from two years ago, don’t try to offer solutions to fix the problem.
EDIT: yikes, the internet really is a cold place. yall are really a bunch of unsympathetic fixers and know-it-alls aren’t you? have you ever heard of commiseration? the fucking arrogance of those of you who think you can just waltz in with a solution.
So your solution is ‘fuck trying to be helpful, they’re finished, don’t even bother’? As someone who is in a similar situation to OP, kindly eat shit and die. I will happily look into ways to regain my mobility, cognitive sharpness, and retrain my brain to overcome my loses, and I’m sure as fuck others would as well. It’s fucking awful to be effectively chained to a bed or chair, forced to watch your life fade away, unable to do anything. I’m always up for trying new medical tech and therapy methods, and I go back to therapy every couple years to try again, and try new ideas.
To have your state of mind is awful for yourself, but is nothing short of disgusting, hurtful, and distressing for others. Truly, fuck you.
You’re making a ton of assumptions here. Go ahead and be angry. You’re so righteous, you can’t even see what an asshole you’re being to OP.
Do you really think they spent two years confined to bed, stuck online, without learning about potential solutions to their struggle? They come here saying the internet is not a welcoming place, and you just reply with a canned “try this!” solution they probably heard of on month two. It’s your arrogance that you think you can just come in here and save someone. What did you expect? “Oh thank goodness you came along to recommend that, I wasn’t able to Google shit myself”? Notice how OP hasn’t even replied to you??
And so ironic that in a thread where the whole point is loneliness from people being assholes online, you respond like such an asshole.
Who’s the problem here, exactly?
I would suspect they would not work. The damage from Covid appears to be neurological and bone conducting headphones only bypass the mechanical components of the ear.
I don’t know your circumstances, or what you’ve tried or can try, but you could look into cochlea implants.
And while nothing about this is ideal or easy, I hope you are able to find your way to heal and rebuild from this trauma. Grieve. You’ve lost a lot. But please don’t give up on yourself (or your wife) quite yet.
Cochlear implants don’t fix brain damage.
The internet is a poor companion these days. I didn’t even know that covid could do such things to you. That is awful. I’m really sorry to hear about your situation. Are you able to use hearing aids? They’ll change your life for the better. Costco has pretty affordable top of the line hearing aids, respectively. Get an evaluation and find out!
You should see an immunologist or rheumatologist. A lot of people with “Long COVID” have been being found to have undiagnosed or inactive autoimmune conditions that were only surfaced by these types of infections. You may be able to improve your quality of life by getting some things under control with medication.
Please don’t give me medical advice. I know what I have. I have a multitude of non-autoimmune diseases triggered by COVID which fall under the umbrella term of long covid. I did not ask for advice. I just wanted to vent.
