Ideally your answer is a sub that you are currently posting to but few others are posting to.
Support groups are something I want to see grow on Lemmy. Anything from abuse, to mental health to chronic illness or addictions. There should also be a way to protect those communities from ableist trolls, a theoretical door so that not just anyone can see the feed. I think it’s important to have that door, because there are people who no matter what you say, they will never have empathy or understanding for people going through those challenges. They will always find a way to convince themselves the person isn’t worthy of empathy or respect. They will try to do harm, and so they should just be blocked out. I’ve sadly already encountered a bit of that on Lemmy.
But I will be honest, I don’t have a plan of action laid out, I’m just throwing it out there. We saw some major platforms become null and unsafe. We should work to reestablish a safe space for folks dealing with those problems. It’s even more important now while we’re going through this breath-takingly crappy year. I myself do not have the skills or energy to moderate one of these groups. It would just be good to work toward having more of those here eventually.
Edit: It would also be cool if we could be more thorough about keeping out troll communities, prevent or discourage them from taking root here. For example fakedisordercringe on Reddit was a vile place. The redpill communities were bad too.
Personal finance ones would be nice
Which ones are you in? I like personal finance and am in several on Reddit, but none here.
[email protected] as your on lemmy.ca?
I would like to see more rpg discussion, I like that the [email protected] doesn’t end-up an D&D community like in the alien website, but I would love to see more than one discussion thread per week.
Basically every regional community. Think towns and states. Those were some of my favorite communities to engage with
we gotta start broad and move local only as the population grows. so for example instead of Columbus you gotta start with Ohio. maybe Pittsburgh can hang out too
I came here to voice this opinion as well. It’s one of the only things I miss about the other site. I have found people on Mastodon attempting to fill that void with regional hashtags though. YMMV.
[email protected] or more specifically (for me at least) [email protected].
And when I tried to ask for information on some treatment it even earned me a downvote. Probably by someone sorting by scaled and not wanting that in their feed or so.
This is a really good idea. Someone in my family has a rare autoimmune disease (relapsing polychondritis), for which the only treatment is a drug (Methotrexate) which has lymphoma as a side effect. It’s a fairly rare disease, with only a small percent of sufferers. I should start a community for it.
Since methotrexate is the only tool allopathic doctors have, and since homeopathy is a snake oil industry, there’s a lot of “word of mouth” suggestions from people who’ve had success from a variety of approaches, some of which work for some people, others not. Low dose Naltrexone (off label), Plaquenil, and avoiding food allergies are things doctors aren’t going to recommend because there are few scientific studies in them - because, again, nobody fucking studies the rare diseases.
Communities are really valuable for sufferers of more rare diseases. I think many people casually downvote such off-label approaches because they think it’s some sort of anti-science, anti-allopathic medicine wackadoo, when in fact the diseases are so uncommon they’re practically unresearched and certainly no pharmaceutical companies are researching cures.
Yes! Lots of folks with chronic illness find themselves in a limbo where they can’t get decent treatment or often precise diagnosis. Crowdsourcing relief has mixed results, but in such circumstances reports of rigorous trial and error with various approaches is sometimes helpful in the absence of the sort of care a lot of Americans now can’t even hope for. I know this because I’ve been there. CIDP here since 2010.
Crowdsourcing has been a blessing in my journey to relieve chronic migraine. There’s a lot of misunderstanding and bad info out there, but at least it has given me options. Doctors have all fixated on blood pressure medication and abortives, which don’t work on me in the former, and the latter leaves me incapacitated when they do work.
Going down the rabbit hole of online discussions helped me figure out I have histamine intolerance, which I was able to verify scientifically once I knew how to investigate it.
What is CIDP?
Crowdsourcing medical assistance is entirely valid, as long as you’re also seeking professional help. Medicine just doesn’t have all the answers, and sometimes “this works for me” is the best advice you can get when there’s nowhere else to turn.
I’m reminded of that old joke:
What do you someone who graduated bottom of their class at medical school?
“Doctor.”
Chronic Inflammatory Demyelinating Polyneuropathy.
Agreed.
Sucks. Sorry to hear that.
deleted by creator
Imma go through and try to post in every one I have relevant knowledge / experience in…
I need to start up a good one for nurses / healthcare workers again on this server (sh has the right vibe for it too) but getting enough people on board for that is always tough. It’s good to have a vent space though because in the nicest way possible 90% of you do not understand hospital ettiquette at ALL (which like, fair, but DAMN).
you know what, I wouldn’t mind a space like that for general healthcare workers or people in the helping professions. I’m in behavioral health but it’s gonna take ages to get that kind of community here. might have to band together under a bigger umbrella. at least we all kinda know what DC d/t NC Bx in f/u UDS means
omg I’m a psych nurse specifically LOL
Imo you just need to set it up so it’s nice and presentable and then do agitprop back in the old country when spez implements another one of his incredible ideas.
Not trying to remake it, because i already have a full time job being self employee and having ADHD
I go back to Reddit weekly to check in with r/locksmith, r/lockshop, and r/accesscontrols
There’s a wealth of knowledge to pull from there that Lemmy just can’t duplicate right now
https://lemmy.world/c/fuckyournelsonlamp
A fediverse successor to Tumblr’s FuckYourNoguchiTable blog and Reddit’s r/FuckYourEamesLounge. Interior design appreciation, (light) shitposting, and discussion beyond basic MCM staples.
[email protected] – Instance agnostic link.
Just subscribed
Thanks! I’d like to post more regularly on my part but just dropping images from mobile feels lazy and I haven’t had much time in front of my desktop to properly format posts recently. Hope to see you there!
- [email protected]
- [email protected] to see which communities people are trying to grow
A way to softly encrypt/obfuscate your handwriting. Fun to get into with friends!
Ahhh nice! I didn’t realize this one was here too not just on reddit 😁
Well it wasn’t until a couple weeks ago 😬 Enjoy!
this is so cool, you will definitely see me there either every day or never or maybe once in a while
Lol, I’ll take it
Oh man, this brings me back. I remember passing notes in middle school in bootleg Elian script - I’m in my 30s now.
It’s by far my favorite cipher because it’s easy to read, it’s easy to modify if someone else learns to read it, and you get a ton of artistic license with the way your letters look so long as they adhere to the basic framework. Really well formed Elian is unrecognizable as script to someone who isn’t looking for it.
Thanks for this, subscribed!
Hey hey, awesome! Yeah it’s super fun. And if you’re good at it (I’m not) it can be super creative!
My buddies and I, and likewise those in this community, try to stick to the standard alphabet arrangement, so we can all read each other’s stuff. Though we do dabble in other puzzlery, using basic Elian as a layer of obfuscation.
Welcome and enjoy!
May be too specific but have been inconsistently trying to get [email protected] going as a community to find alternatives/similar stuff to what one likes.
It’s a riff on the old ifyoulikeblank subreddit without the initially unclear tagging requirements.
People comment, which is great, but few other posters.
looks fun
I was looking for something like this, thank you!
[email protected] is great for people missing parents. Need a hug? DIY advice? Someone to be proud of you? There’s a whole group of dads poised and ready to help!
One of my favourite things on Reddit was movie discussions. I’ve joined a bunch of movie communities with [email protected] being the most active but I would love if more people were on it!
We’re trying our best
who doesn’t like movies!
I miss the random passion of /r/CFB. It was great because all of the toxicity normally in sports was gone, and everyone was just enjoying the game and news about their teams. In the off-season people would concoct the most convoluted, elaborate shitpost for why their team is the best. I think my favorite essay was once about how the Alabama Crimson Tide’s greatest enemy wasn’t any other team, but the full moon, and went into a heavy statistical data dive to demonstrate how the teams few losses (they were seriously on an unprecedented run for over a decade) all came on or around the full moon. That and the team are the Tide, so of course it’s the moon.
That type of energy focuses on college football is lacking in Lemmy, and I haven’t found something similar here yet
I miss /soccer and /MLS. The /soccer community was HUGELY international, so I got to learn all about leagues around the world.
Agreed. Sports is one of the last things that tempt me to log back into reddit. The sport I follow has a community here and a little bit of activity, but not enough to keep game threads active.
