it’s bad that this is non-consensual and for-profit but a large genetic database is helpful for developing medications
I agree. Under socialism, a database of genetics would be truly fantastic for medical research and preemptively alerting people at risk of certain disorders. Under capitalism it’s an excuse to not insure people.
I FUCKING KNEW IT
Health insurance is next if they don’t have it already.
I’m still convinced this data will be used for eugenics too.
“We are pleased to announce a GATTACA society, as featured in the hit movie ‘please don’t make this real’ GATTACA.”
We all knew this was going to happen honestly, but it makes me want to puke to think that it’s even legal.
We all assumed it was already happening
So this effects about 90% of white Americans. They’re the only ones I see taking this shit seriously.
23andMe&Billionaires
It really sucks because it’s not just the data of the people who chose to participate in this, but also effectively all of of these people’s biological children.
I know that my idiot parents both did one of these things - it’s so frustrating.
I know damn well this will be used for one drop rule purposes in the future.
Sorry sweetie you can’t have low deductible health insurance because meemaw and peppep wanted to see what % Cherokee they were 50 years ago
My siblings did it, so they effectively have mine
Linking 23andMe’s press release because every article I can find on it is paywalled
Press release text
23andMe today announced a new, non-exclusive data license with GSK which extends their collaboration and enables GSK to conduct drug target discovery and other research using the 23andMe database, the world’s largest recontactable resource of genetic and phenotypic information from consented participants. Under an amendment to their Collaboration Agreement, 23andMe will receive a $20 million upfront payment for a one year, non-exclusive data license. The license will also include access to certain services such as further analyses of the 23andMe data not provided in the core data release.
“We’ve had an incredibly successful collaboration with GSK over the past five years, and we are excited to continue our work together,” said Anne Wojcicki, CEO and Co-Founder, 23andMe. “With approximately 50 programs developed over the last five years, we are thrilled to work with GSK in discovering genetically validated targets. The continued relationship with GSK demonstrates the power of the 23andMe research platform to consistently produce novel insights for therapeutic development, rooted in human genetics.”
Under terms of the new data license, 23andMe will provide GSK with access to de-identified, summary data from global genome- and phenome-wide analysis of the 23andMe database, for a 12-month period, and offer its research services for analyses of the data over that same period. Any new drug discovery programs that GSK chooses to initiate during the agreement will be owned and advanced solely by GSK. 23andMe may be eligible for downstream royalties under certain uses of the database by GSK. As part of the amendment, 23andMe is taking the royalty option on three programs previously initiated by the two companies, which GSK will independently advance, with 23andMe retaining certain rights to downstream royalties. 23andMe and GSK both retain royalties on a number of active programs developed under the initial collaboration.
“The 23andMe research database is constantly growing, which increases its power for therapeutic research over time,” said Adam Auton, Vice President, Human Genetics at 23andMe. “We’ve also made significant strides to increase the power of our database by improving our imputation technology, utilizing whole genome sequencing data to dramatically increase the number of genetic variants that we’re able to interrogate. In addition, we continue to expand our capabilities in deep phenotyping, artificial intelligence and machine learning, rare disease research, and developing recontactable cohorts in specific disease areas, all with the objective of more efficiently identifying drug targets that will hopefully be developed into new medicines.”
Under terms of the new data license, 23andMe will provide GSK with access to de-identified, summary data from global genome- and phenome-wide analysis of the 23andMe database, for a 12-month period, and offer its research services for analyses of the data over that same period.
Wait that’s fine. That’s part of the point of 23andMe, de-identified data being used for research was always one of the selling points.
I mean “anonymized” data very frequently is pretty easy to de-anonymize
but yeah nobody commenting doom and gloom seems to have read the details cause its all paywalled
other research
Ominous
We all knew this shit was coming. Big Pharma is cartoon villain shit.
I honestly thought they were already doing this.
They’ve been giving it to cops for a while. They’ll use the extended family to pin point their unknown person, so like if you have some third cousins that have gotten in, they’ll possibly be able to find you. If a parent has their information in, or both, well your family for a few generations will be fucked.
im not a geneticist but knowing how much cops suck & misuse dna ‘evidence’, i can’t really imagine how knowing a suspect could be in the hundreds of an extended family actually be… they must be using it mostly to get around having to procure a warrant to test people’s dna
sorta. it lets you narrow down existing suspect pools, or open up new pools that you can then narrow down by more traditional means. but probably all of the above and worse are happening cause its cops
Class action incoming hopefully
They will pay a symbolic $23 million, 80% of which will go to the lawyers
sorry honey, the contract has to be enforced
looking like a real “you can’t unlick my asshole” situation here honestly
You need to have the research option enabled for your data to be included in this, iirc
*edit: but I agree with your sentiment. This shouldn’t even be an option they could pursue.
No way. I’m certain their TOS covers this.
Still pissed at my family all getting these done. Thanks for putting me in every single database against my will
Every damn warning we said about this company has come true. The only reason this is legal is because there’s money to be made at the expense of others.
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I thought it said “dogmakers” and became very intrigued for a moment
So glad my relatives that are into genealogy/family tree research see DNA companies like this as cheating
yeah just talk to your grandparents if you want to know this stuff goodness sake. Any ancestral connection to a place past 5 generations is wiped out anyway
The three grandparents who are dead, or the one who’s descending into dementia?
Or the ones who might not even actually be biologically related, but they might not know that?
How about the ones who were adopted?
It helps that my family doesn’t give a shit about where our ancestors lived and care more about how we’re related to other members of our ethno-religous group. Like they’ll meet someone with a certain last name, ask a few questions about grandparents and your mother’s maiden name, and figure out you’re second cousins three times removed, that sort of thing. No one’s looking back to see which corner of eastern europe they could claim right of return to just because their great-great-great-great-grandfather lived there
It helps that I’m largely just from several generations of Polish peasantry. That could feasibly mean anything, but nothing too remarkable.
